April 7, 2026

"These videos are an unintended result of a law passed by Congress in 2016, mandating that providers give patients full access to the entirety of their medical records..."

"... as quickly as possible. The law went into effect in 2021, and ever since, 'raw' test results have arrived on our screens the instant they’re processed at the lab. This may be a victory for patients’ rights. But it also has the potential to be extremely unsettling. Information that was once delivered via live conversation with a human being, one trained in medical interpretation, is now frequently encountered first as decontextualized data on the screen. This unmediated medical data is now arriving at random moments in our lives. It can come any time of day, when you’re surrounded by people or all alone. Suddenly, you’re faced with a private decision — open? ignore? wait? It is out of the strangeness of this moment that the genre of medical results videos was born. People don’t know what to do with the experience of getting their data, and so they turn their cameras on...."

From "Why Am I Watching People Get Their Medical Results? What was once discussed with a doctor is now frequently encountered first as decontextualized data on a screen" (NYT)(gift link, with links to examples of these videos).

56 comments:

Lazarus said...

No worries, by the time people figure out how to use the app (sometime next year) they will already have met with their doctors.

Levi Starks said...

AI will contextualize it for you.

Joe Bar said...

I note that they only show women filming their reactions.

I get the same notifications. It was pretty cool playing around with the MRI from my back, but otherwise, so what?

Howard said...

That's right. Reality is just too complicated too harsh making it overwhelming for an average citizen of the United States to be allowed to see. It must be curated by an author who will tell you what the results mean at least in their opinion and then is able to provide you with assurances that they can fix the problem and your insurance will cover it. Maybe not.

I'll never forget going with my father on an appointment to see his GP because he was experiencing back pain. This occurred a few months after his radiation treatments for inoperable bladder cancer had finished.

The GP was a certified moron you could tell by his mannerisms and his facial expressions. As he was looking on the computer he said oh I see the results have come out from a recent CAT scan of your tumor. He read the report slowly deliberately and deadpan without any emotion or without any awareness of what he was reading. It basically described that the cancer had spread dramatically and was now invading the rest of his body with most of it settling in his lower spine eating away the bones. Neither my father nor the doctor seem to be aware that it was a death sentence that he was reading.

RCOCEAN II said...

So people like to post videos of themselves seeing their lab results. Okay, whatever. The exhibitionism never ends. I guess it has its good side. People with the same illnesses sharing. A sort of internet support group. Anyway, nice to know what the NYT's writers/readers are up to. Truly a different world.

Dude1394 said...

I run it all through grok.

RCOCEAN II said...

Usually, i just wait for my doctor to comment. Why pay all that money and do it myself?

Wince said...

I just received a raw pathology lab report of a basal cell carcinoma over my patient portal before the doctor contacted me to explain. Not a big deal for me but I could imagine raw test results like that for more serious conditions could unsettle some people.

RCOCEAN II said...

How things have changed. I can remember guys from my Dad's Generation. They had to be nagged to go to the Doctor, would ignore medical advice, and generally thought getting treated for illnesses a big bore. They were the opposite of "risk adverse" and didn't want to give up their cigars and booze, even when told of the risks.

Now, we all scrutinize our test results and eat tofu.

Smilin' Jack said...

“From "Why Am I Watching People Get Their Medical Results?”

Well, why are you, dumbass? If you don’t like it, watch something else.

Triangle Man said...

Some people will look for validation wherever they can get it.

mikee said...

Here to second the sentiment of Smilin' Jack, above. Someone is making a grotesque display of their otherwise private lives does not require anyone else's participation. Let them post, and leave them alone. They post for themselves as much as for the worthless viewings. May their attention gaining attempts be ignored by one and all. And may their test results include an extra note at the bottom about nobody else needing to know about it at all.

mikee said...

Now, way back in the days of yore, when ultrasounds of pregnancy were a rarity still, my wife (then a medical student) and I went to get one, because she could and it was free. The tech gooped her up and applied the magic wand to her belly, and we saw that her parasitical infestation was endowed with the appropriate number of eyes, elbows, fingers, toes and other bits and pieces. Then the tech asked if we wanted to know the sex. Of course! So after a careful adjustment of the sonic source, a 3"x3" grainy picture was printed out. And we had a perfect crotch shot demonstrating we indeed had a son on the way.

I blew it up to 12"x 12" and posted it on my office door at work. Just for bragging rights. Hypocritical, yes, but funny as hell, too.

Brian McKim and/or Traci Skene said...

NYT is on a mission to preserve at all costs the authority of the experts. Doctors today, teachers tomorrow, immunologists the next day. We see through it. NYT readers aren't all that intelligent, are they?

Marcus Bressler said...

I am fine with test results coming my way as soon as they are available. After all, I paid for them (directly or indirectly) and I am not a womyn living in the NYT's sphere of influence. Much better and it is not an "unintended result" -- everything Congress does has an unintended result according to some people, usually the Left. If you want to wait for your doctor, you know, the one you could keep in Obamacare, you can.

Harun said...

Kaiser offers a "normal range" above your score which is helpful.

Aggie said...

We should all be terrified, all the time, and fearful that the unknown and things we don't comprehend might bring bad news, which the Authorities will provide at a later time, to be advised. The only safe thing is to remain ignorant and obedient.

Reminder: Hate the modern progressive legacy media.

Gospace said...

I like being able to see my test results without consultation. I'm fully able to understand the. Used to not be able to- I live in the Empire of NY governed by Dictator Hochul and a demoncRAT cabal. Used to be unlawful for us peons to see them without consultation with expert trained medical professionals. Like the new NP who who was going to not renew my metformin as she told me I've never had a blood test showing pre-diabetes as she handed my a lab slip showing I had an A1C level showing just that... I changed PCPs immediately.

In free states- like FL where one son lives, the free people are able to order up their own blood tests- indeed- any medical tests and pay for them. On their own! My son does that on a regular basis for various blood panels. Meanwhile my daughter here in NY has a PCP who refuses to order an iron panel to test for hemochromatosis. She has concerning numbers concerning liver function. PCP wants to run her through a bunch of other tests. A 3 generation history of diabetes, which can be caused by high iron, one brother recently diagnosed with it, another told by the Red Cross he should be tested for it, and me- not diagnosed but when I had my iron panel- drawn the day after a blood donation- high where it was bad to be high, low where it was bad to be low, but just short of the diagnosis points. I've apparently been keeping it under control by regular blood, now platelet donations since I was 18. 10 platelet donations so far this year.

One good thing, people now talk about medical things, both physical and mental, much more they used to. So my children are fully aware of a 3 generation history of diabetes on my paternal side, and a 3 generation history of alcoholism on my maternal side. And other medical problems from their maternal side.

Peachy said...

I had to take my father to a medical appointment in Greeley.
He is in a medical system pushed and pulls him into different cites in the area. Totally annoying.
It was a sedated procedure for his heart. Anyway we were promised that the doctor who did the procedure would be back to fill us in on the details and results. He never came back. Excuse was "He is in clinic" .
His other PA - who wrote the order for the procedure was also not available in a timely manner. So we languished for weeks not knowing the results. We did check his chart on-line, and the results were there, but we did not understand them. We needed a doctor to explain.
Often the my chart system is helpful - but not always.
I think much of it is a tangles mess because of what the idiots in government do to wreck it all.

Harun said...

Also, you can see a graph of your previous scores. This is pretty useful if you're a kidney disease patient.

The one thing is that if you're off the normal, sometimes its not that big a deal.

Ampersand said...

Another day of the NYT oscillating between "it's not enough" and "it's too much". All the dissatisfactions fit to print.

Mike (MJB Wolf) said...

That sounds like a subset of the Reaction Video genre. My interaction with the genre has so far been limited to people reacting to music for the first time. For example a modern black guy hearing the Righteous Brothers sing "You've Got that Lovin' Feeling" for the first time. Then there's a retired opera lady who listens to rock (classic to '90s era) and reacts/analyzes the vocals.

Reacting to medical reports (I've seen a lot of them) seems less entertaining. Hence the headline of the article in question...

Jamie said...

NYT is on a mission to preserve at all costs the authority of the experts.

That was my interpretation. And also what Smilin' Jack said.

Don't get me wrong - I'm not any kind of medical worker and I rely on my various docs to put things into perspective for me. But what anxiety comes from early access to your raw results that wouldn't also come from having to wait for the interpretation of a test that you've been ordered because of the possibility of something bad? We all know that anxiety is rampant in our society, especially among us women (and especially especially among leftist women).

This article sounds like the denizens of the Capital watching the Hunter Games: it's fun for them, somehow.

Mike (MJB Wolf) said...

That "it can happen anytime of day" line stuck out at me. I detest "notifications" and keep them to the bare minimum on my devices. I can't imagine hearing a sound every time something happened for which I have an app.

Mike (MJB Wolf) said...

At least with MyChart (the patient portal most teaching hospitals use) you generally get the report along with the imagery, so it has been interpreted. Just today, doctor called up Mrs. MJB's records back to 2011 for certain numbers we keep an eye on while we sat with her in her office, so it really has high utility for our family.

Tina Trent said...

I agree. It is unsettling. But I have also used AI to determine which questions I should ask my doctors about the results -- if I get to see the doctors for more than five minutes after checking in on multiple devices that take half an hour. Our medical system is broken. If I have to deal with one more redundant and buggy "portal," Iam going to start telling doctors that I don't own a computer or a smartphone.

Tina Trent said...

Sorry for you, Howard.

Peachy said...

Democrats demand we throw more money at Obamacare.

Lem Vibe Bandit said...

Omg. What if people ask AI what their medical data means?

That's What I Would Do.

Is "What do I do" the same as "What'll I Do" -- written by Irving Berlin in 1924.?

What'll I do
With just a photograph (a medical chart in this case)
To tell my troubles to?

Lem Vibe Bandit said...

The authorities are worried that Dr House is not there to interpret the data correctly because... Dr House was a fictitious character on a TV show.

Lem Vibe Bandit said...

I got the results of my Covid test on my computer screen. I had already suspected a positive (negative) result because I was feeling it. So, I had already quarantined. Looking back on it now, I don't remember having the thought of buying a bottle. I could be wrong. Memories are flimsy, unreliable.

Alexisa said...
This comment has been removed by the author.
Alexisa said...

"So people like to post videos of themselves seeing their lab results. Okay, whatever. The exhibitionism never ends"

Yup. Very annoying. I see so many "influencers" split screening the subject with a selfie cam of their reactions. As if they matter at all.

Worse are the searches for movie scenes that return some idiot giving me his lame breakdown. Sometimes they don't even show the scene.

Then there's the trans nonsense "educating" you about their preferred pronouns. I recall one "gender fluid" creep who rotated gender identities every 3 hours. But no worries, it had devised a pattern of color-coded wrist bands for everyone to memorize so they could address it properly LOL

Vanity, definitely my favorite sin.

Lem Vibe Bandit said...

Memories may be flimsy and unreliable, but a reaction video is the worst.

Rabel said...

Writing that the videos are a "result" of the law, however unintended, is, well, I can't come up with a witty comparison so I'll just say that it is somewhere on the far side of stupid.

Achilles said...

Our health care industry is populated and managed by ghouls and demons.

We cannot replace doctors and hospitals with AGI and robots fast enough.

Mary Beth said...

A law passed ten years ago, that went into effect five years ago isn't causing these videos. It enabled them, but narcissists searching for content is what caused them.

Achilles said...

Obamacare changed the health care industry and made it a system to manage humans as costly objects rather than improve the health of Americans.

Obama was a demon and he worked with the Insurance companies to turn americans into a barcode insurance companies could track to maximize their profits.

Doctors look at patients as people to prescribe drugs to so they get a kickback.

The entire system is corrupt. They are still telling people to eat wheat and low fat diets. They are still telling people that high cholesterol is bad for you even though they know the truth and that hypothesis is indefensible all so they can keep selling you statins.

There are few things that are more depraved and evil that what our health care system has become and the people who made it happen.

Leland said...

The medical records you would have access to were created by a medical professional who entered them into the system for which you are able to access. Maybe it is because I live with a medical professional, I don't see this to be an issue, but honestly, I'm trying to figure out what the issue is to a patient having access to their medical records? The idea that people might self-diagnose is always a problem, but if they were in the habit of doing so; then they likely wouldn't even have a medical record from a medical professional. I do understand that you can now go straight to Quest, order your own labs, pay for them, and get the results without meeting with a PcP. If you got the money to do that, then you probably know what the labs are and what the results mean.

Gospace said...

Leland said...
...
I do understand that you can now go straight to Quest, order your own labs, pay for them, and get the results without meeting with a PcP.


If you live in a free state, not available in NY under Dictator Hochul.

Original Mike said...

"Suddenly, you’re faced with a private decision — open? ignore? wait?"

I wait. Schrödinger's Cat.

n.n said...
This comment has been removed by the author.
bagoh20 said...

Although I have insurance, I get my own tests all the time, ordered on line and paid for in advance. My doctor never even sees them unless I show them to him. I research what they show, maybe use AI, and various medical websites to figure out what they mean. Doctors used to be the only reasonable way to get that, but not today.
I had liver cancer years ago and it went undiagnosed by my doctor for months until I researched my blood work and asked for more tests. I was saved just in time by a transplant, but I would have died if I only trusted my doctors. They are just people. Like the rest of us, they are fallible, busy, distracted, and sometimes incompetent. I'm not trusting anyone with my life when I have today's resources and only one patient to concentrate on. I count on my doctor to talk me down from an overreaction to test results rather than depend on him to make me concerned.

n.n said...

Dear JI. Are you a voyeur? Is AI spying on me?

bagoh20 said...

I check my blood pressure, and do my own EKGs at home, and do blood work every few months with an online order that takes a 5 minute stop at the lab with results in my email in 24 hours. A complete blood count and a comprehensive metabolic panel both for $60. And you can order all kinds of other tests too.

bagoh20 said...

You can prompt AI with your test results, symptoms, and all the medications and supplements you take, and add your diet and lifestyle and get it analyze all that in depth, and ask it endless follow up questions for hours. No doctor can or would do that.

Maynard said...

I had a post-pneumonia chest X-ray about 90 minutes ago. The guy will have the results posted before the end of the day. Nt bad turn around.

Greg The Class Traitor said...

I love getting the test results ASAP. Yes, I like getting the doctor's note explaining them, but I can look up information myself.

Anyone whining about this is a loser who's welcome not to look at their own results

loudogblog said...

"People don’t know what to do with the experience of getting their data"

That's why you discuss your test results with your doctor. Over the last six months, I have literally had hundreds of medical tests done on me and I was glad to get the results quickly because they either relieved my anxiety or they gave me the information that I needed to ask my doctors the right questions.

tastid212 said...

I had blood drawn this morning for my annual lab tests. Results back this afternoon. Fortunately, all is good - but how would I feel if my PSA had spiked? I would have, what? Poured a stiff drink or three and googled the shit out of PSA tests. The doctor wouldn’t have gotten to it until tonight or later. Yeah, a double-edged scalpel to be sure.

mongo said...

“Kaiser offers a "normal range" above your score which is helpful.”

I have learned through experience that different lab companies have different definitions of “normal range.” I don’t understand why - can someone more medically inclined explain?

Oso Negro said...

@ Bagoh - Mucho respeto, vato!

Ann Althouse said...

You can’t tell whether they really are looking at the results for the first time. You can’t even tell whether they’re authentically looking at results. These are just people who have made videos where they’re apparently looking at a computer screen and who knows what they’re seeing. Also, they’re not live streaming. They’re putting up video after they’ve made it and they’re choosing what to display. If it was a horrendous experience and they wanted their privacy, they could just decline to post it. So I think one reason to turn the video camera on is to not be alone. There’s company but only theoretical company because they don’t have to post. And even if they do post, it it’s almost only imaginary company, the idea that there are people out there who will watch and care. And don’t we all put the results into AI and get pseudo caring from that place too? And really, how genuinely human and caring are the healthcare providers?

Christy said...

I received my two cancer diagnoses over the phone both from wonderful doctors who called as soon as they received the lab results. The lady cancer surgery was the week after the sonogram. My internist called the morning after the blood work and told me I had leukemia, to hie over to the ER with a
packed bag. From the moment tests came in, doctors held my hand and explained everything fully. Of course, this being the South, that first ER doctor offered to pray with me. Oddly comforting to this lapsed Southern Baptist. Anyhow, just wanted to say, my now considerable experience with medical tests doesn't reflect that of the NYT's journalist's best buds.

And of course, social media whores overshare.

Mason G said...

"And really, how genuinely human and caring are the healthcare providers?"

I'm not sure how to measure "human and caring", but my PCP identified an issue that, uncorrected, would have killed me. I'm satisfied with "professional and knowledgeable".

Narr said...

"And don't we all put the results into AI and get pseudo caring from that place too?"

No, and no.

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