१३ एप्रिल, २०१९

"Ten days after my surgery, I have to go back to work. I’ve been teaching through the months of chemotherapy, but..."

"... despite this, I’ve run out of medical leave. I am driven there by my friends, many of whom have already had to make great sacrifices to help me. Some write checks, some help me drain the surgical tubes stitched to my body, others send mixtapes or cannabis popcorn. My friends carry my books into the classroom, because I can’t use my arms. Delirious from pain, I give a three-hour lecture on Walt Whitman’s poem 'The Sleepers'—'wandering and confused, lost to myself, ill-assorted, contradictory'—with the drainage bags stitched to my tightly compressed chest. My students have no idea what has been done to me or how much I hurt. I have always wanted to write the most beautiful book against beauty. I’d call it 'Cyclophosphamide, doxorubicin, paclitaxel, docetaxel, carboplatin, steroids, anti-inflammatories, antipsychotic anti-nausea meds, anti-anxiety anti-nausea meds, antidepressants, sedatives, saline flushes, acid reducers, eye drops, ear drops, numbing creams, alcohol wipes, blood thinners, antihistamines, antibiotics, antifungals, antibacterials, sleep aids, D3, B12, B6, joints and oils and edibles, hydrocodone, oxycodone, fentanyl, morphine, eyebrow pencils, face creams.' Then the surgeon calls to tell me that, as far as she can tell, the drugs have worked, the cancer is gone. The surgery performed after six months of chemotherapy reveals a 'pathologic complete response,' the outcome I’ve hoped for, the one that gives me the greatest chance that, when I die, it won’t be of this. With that news, I am like a baby being born into the hands of a body made only of the grand debt of love and rage, and if I live another forty-one years to avenge what has happened it still won’t be enough."

From "What Cancer Takes Away/When I got sick, I warned my friends: Don’t try to make me stop thinking about death" by Anne Boyer, a fantastically well-written essay in The New Yorker. Her book "The Undying: Pain, vulnerability, mortality, medicine, art, time, dreams, data, exhaustion, cancer, and care" will be out in September.

I've only copied a small extract, chosen not because it's the most impressively written part of the essay, but because: 1. The subject is teaching — the way the students don't know what is happening inside their teacher and a truly heroic carrying on would go entirely unnoticed (3 hours!), and 2. I love Walt Whitman, and I like how Boyer (a poet) follows the invocation of Whitman with a Whitmanesque list of her own.

Would you like Walt Whitman to read "The Sleepers" to you?

४५ टिप्पण्या:

Menahem Globus म्हणाले...

"I’ve run out of medical leave."

If she's a teacher she should have long and short term disability insurance that kicks in after medical leave is exhausted. Did she fail to opt into these programs or aren't we getting the whole story in her essay?

Birkel म्हणाले...

Under the ADA they cannot fire her and the reasonable accommodations would likely involve less than 3 hour lectures.
The end of her paid leave just means she would have to suffer unpaid leave with a job to which she could return.

Practically speaking, she is better off than other 41 year old cancer patients.
If she can get through this and be declared cancer free, she has 20 years to repay loans, pay doctors, and rebuild her financial life.

It's terrible that she got sick.
It would be worse for the rest of us if her experience led people to think a single payer system would be better.
If she is saved from disease, it will be because of

Free markets.
Free people.

rhhardin म्हणाले...

Weddings, tears and diseases are women's entertainment fare.

Josephbleau म्हणाले...

Under a future Universal Health Care Plan, she would be told that at some point you have had enough expensive treatment and need to wrap it up.

Josephbleau म्हणाले...

I have never heard of a University that schedules 3 hour lectures, is this an evening social event? There are 3 hour courses meeting two days a week for 1.5 hrs, but how do you get students to sit for 3 hours without going to the bathroom?

Nichevo म्हणाले...

Josephbleau said...
Under a future Universal Health Care Plan, she would be told that at some point you have had enough expensive treatment and need to wrap it up.

4/13/19, 11:12 AM


That was my first thought. Honestly, her value to anyone but herself and her circle is approximately zero. Deep in the red considering all her treatment costs. It's not like she couldn't have been replaced. Much cheaper to offer her a supplement of nightlock berries. Take the money you save and treat, house, feed, educate, jail those precious illegal aliens.

Wince म्हणाले...

Only private insurance should insure a lifestyle that we've become accustomed to in the high income percentiles.

She really does seem discontent with living a life at social safety net level that can be afforded to all people, rich and poor.

Many "egalitarian socialists" take a similar elitist view.

MayBee म्हणाले...

I don't have anything to say about this. I'm sorry she is ill. My sister just went through cancer surgeries and treatment for 3 years, working not as a teacher but an engineer, and not for 3 hour lectures but for 8 hour days, business trips, etc. People knew what she was going through because she had to miss days for surgery and chemo, because she lost her hair, because she sometimes shuffled rather than walked,and because there were months she had to wear ugg boots and elastic waist pants because her skin was too sensitive for any "real" clothes.
She did have a company that helped her deal with medical leave, short term disability, and long term disability.
She had an amazing, positive attitude the whole time and we spent our days together laughing.

I would have given anything for her to hear the words the it all worked. Sometimes the missing of her is unbearable.

Tomcc म्हणाले...

After reading just what was included in the post, I had two thoughts:
1) She's a dedicated teacher- good for her!
2) I don't know how common it is, but I know of several large organizations that allow their employees to donate leave time to others- for precisely this situation. Maybe hers doesn't?

BarrySanders20 म्हणाले...

I cannot imagine sitting through a three hour lecture by a delirious person about a poem. Especially one by a delirious person who thinks she is being heroic.

Jupiter म्हणाले...

If she really gave a three-hour lecture on a Whitman poem, she has no idea what she has done to her students, or how much they hurt.

MayBee म्हणाले...

And there is a cost to loved ones and friends. My niece took an unpaid FML and spent a lot of time with her mother. I spent weeks there when I could, meaning my husband took on our business and our home and I got people to cover for the things I needed cover for. But what are the options? You love people and you take care of them and there really isn't an entity that could make it more financially fair. There is nothing less fair than the oncoming death or the ongoing illness of someone you love.

Yancey Ward म्हणाले...

I had read essay earlier in the week and agree, it is a wonderful one. I also agree with the first comment in this thread- I don't think you are getting the entire story about the medical leave problems. Even worse, the US government already runs a disability program through the SSA. Given her stated condition, I think it would have been an easy call for any administrative judge, and her actual job would still likely be there after the unpaid portion of her leave.

Mike Sylwester म्हणाले...

PBS recently broadcast a series of Ken Burns' documentaries about cancer -- called The Emperor of All Maladies. It was a superb series.

Sebastian म्हणाले...

"I am like a baby being born into the hands of a body made only of the grand debt of love and rage"

A baby being born into the hands of a body? A body made only of the grand debt of love and rage? The grand debt of love and rage?

That is "fantastically well-written"? Huh.

Sebastian म्हणाले...

"or aren't we getting the whole story in her essay?"

Facts would spoil the effect. Of course she could have gone on disability. Of course she could have gone on "unpaid" leave. Of course, being single (?), she could have built up her savings to last through an emergency. Of course, God forbid, she could have spent down everything she had and gone on Medicaid--the horror!

Fernandinande म्हणाले...

Cancer survival, 1975 vs 2007

E.g.
"Among adults diagnosed with cancer during the period from 1974 through 1976, the 5-year relative survival rate for all cancers combined was 50%."

"Among adults, the 5-year relative survival rate for all cancers combined is now [=2007] approximately 68%"

DrSquid म्हणाले...

Man, some people would complain even if you hung them with new rope.

Fernandinande म्हणाले...

If she really gave a three-hour lecture on a Whitman poem,

Whitman poems cause cancer.

Achilles म्हणाले...

I want a job I could do while on chemotherapy.

I can't think of a single job my wife or my dad or myself or anyone in my family has held that could be performed while on chemo.

If you want universal health care it exists already.

Go join the Army.

People that want to force the VA system on everyone should go live in it first.

cf म्हणाले...

rhhardin said..."Weddings, tears and diseases are women's entertainment fare."

I am with you, rh, though i'm a grrrl, i have never been able to relate to this attention to the wet, gooey, emotional detail that my beloved fellow dudettes can go on and on about.

OH! But Whitman, Oh! The entire post is redeemed to give us this ending. I could not bear to watch the animation, but just to listen, oh! A grand Saturday listening. and that site it comes from is promising, more gold.

thanks, Ann!

NotWhoIUsedtoBe म्हणाले...

"After my double mastectomy, I am evicted from the recovery ward. The nurse wakes me up from the anesthesia and attempts to fill out the exit questionnaire while I argue with her that I am not O.K. I tell her that my pain is not managed, that I have not yet gone to the bathroom, that I have not yet been given instructions, that I cannot stand. Then the nurse makes me leave, and I leave.

You can’t drive yourself home, of course, when you are whimpering in pain, unable to use your arms, with four drainage bags hanging from your torso, delirious from anesthesia and barely able to walk. You are not supposed to be alone when you get home, either. But no one really asks how you manage it once you are forced out of the surgical center—who, if anyone, you have to care for you."

WTF

NotWhoIUsedtoBe म्हणाले...

She sure spends a lot of time lamenting being alone.

Birches म्हणाले...

Umm. My dad was a mechanic at a mom and pop shop when he got cancer. He was sick for a few years. He never had any problem with leave. I want to enjoy the beauty of her words, but this kind of myth making makes me doubt all of her words.

Birches म्हणाले...

@john Lynch

Strong argument for marriage and children

traditionalguy म्हणाले...

Death where is your sting. We get our full life span, but still rage against the darkness. As a famous cancer research Doctor told me, “God always wins. We all die.And a famous Marine told the men in battle, “what do you want? To live forever?”

Can’t wait to read it , since it meets The Professor’s standards it must be a winner.

Michael K म्हणाले...


"After my double mastectomy, I am evicted from the recovery ward. The nurse wakes me up from the anesthesia and attempts to fill out the exit questionnaire while I argue with her that I am not O.K. I tell her that my pain is not managed, that I have not yet gone to the bathroom, that I have not yet been given instructions, that I cannot stand. Then the nurse makes me leave, and I leave.


Welcome to the world of Obamacare. I practiced surgery for 30 years and never saw that,

Four times with Blogger so far,

Roughcoat म्हणाले...

Cultivate stoicism, buttercup. Endeavor to persevere.

Roughcoat म्हणाले...

Pee-wee Herman voice: *Life is so unfair!*

John Scott म्हणाले...

Sometimes you just have to do what you have to do. I went through cancer treatment two years ago. I'm self-employed. My treatment included surgery and then six weeks of Chemo and radiation sessions. Each surgery, of course, is different, but that part of my treatment was the easiest part to deal with, even though they had to remove my right sternocleidomastoid muscle and jugular vein. I had the surgery on a Tuesday. That Friday I went back to work. On Monday I went back to the gym. Chemo and radiation treatment started about a month later. Chemo was once a week in 5 hour sessions: two hours of hydration; two hours of anti-nausea medicine; one hour of actual Chemotherapy. I would go back to work when they were through. Radiation sessions took place every week day, but they were short. They lasted less than a 1/2 hour and were scheduled before work. I don't have employees, but I'm lucky in that I have a very capable son. Home from school, he was able to watch my shop during my Chemo sessions or when I was to nauseated to work.

In my case the radiation was targeting tumors on the base of my tongue. The effects of radiation treatment are cumulative. You don't start feeling them until about 4 weeks into the treatment. The week after my treatments ended was the worst for me. Between the nausea from the Chemo and the side effects from the radiation, I had lost 40 lbs. Unfortunately, it was at a time that my son had a planned trip to Israel. And shortly after that he would have to go back to school. I had no choice but to close shop. But if I don't work I don't get paid. Three weeks after my last treatment I dragged my 126 lb body back to work. Like I said, sometimes you have to do what you have to do.

LuAnn Zieman म्हणाले...

Listening to Walt Whitman read "The Sleeper" made me so drowsy. Love his voice; it's very soothing. Now I need a nap!

mikee म्हणाले...

Congratulations to the author on beating her cancer, and on her strength while doing so!
I hope I never have to do the same myself, and would not wish the process on any enemy I have.
The old saying goes, "To live is to suffer. To survive is to find meaning in that suffering."

JAORE म्हणाले...

Delirious from pain, I give a three-hour lecture...

Amazing if true.

Even more amazing if someone "delirious with pain" gave a coherent lecture.

It would be interesting to hear from the students about how the perceived the lecture.

James K म्हणाले...

But no one really asks how you manage it once you are forced out of the surgical center—who, if anyone, you have to care for you.

What kind of two-bit hospital was this? When I've had even minor procedures involving anesthesia someone has had to pick me up. When I had a relatively routine outpatient surgical procedure, an orderly escorted me in a wheelchair (along with the person who picked me up) to the taxi. If the story is really true, then she didn't do any research about where she should have her medical treatment, or had no choice for some reason.

I feel sorry for her, but as was noted above, something doesn't seem right. She also seems a bit entitled. "In the United States, if you aren’t someone’s child or parent or spouse, the law does not guarantee you leave from work to take care of them." Meaning employers are not forced to let their employees take paid time off for essentially any reason whatsoever.

ken in tx म्हणाले...

A 3 hour lecture is totally worthless. Nobody remembers anything after the first 50 minutes. The military studied this and proved it, back in the late 1960s.

Bill Peschel म्हणाले...

"a truly heroic carrying on would go entirely unnoticed (3 hours!)"

Really? I'd love to hear from the students about what they thought.

And doesn't preserving her heroic effort in ink and paper belie the meaning of "unnoticed"?

(That said, I'm reminded to enjoy the view from my picture window and then get back to work.)

Rabel म्हणाले...

She's lying about details. She has a book to sell, and she probably actually had cancer, but the obvious lies make it hard to take the larger story at face value.

Amy म्हणाले...

I went through breast cancer treatment 10 years ago. I had surgery, chemo (x6), 11 more treatments of a specific anti-cancer drug (to complete a year of medications through my port), 6 weeks of daily radiation and 5 years of anti-estrogen medication. I think I know from whence I speak. I am 100% straight commission and worked every day throughout. I had long/short term disability and never used it. I'm sorry she had it so hard. But damn, that was a very dramatic piece of writing.
My experience was nothing like hers. The quality of care was excellent as was the compassion from all heath care providers. It's no pleasure cruise, but I did not relate to what she wrote at all.

MadisonMan म्हणाले...

Hmm. A Professor at the Kansas City Art Institute (about 700 students attend this private school) since 2011. They must have very poor benefits if she hasn't been able to save vacation and leave time to help her deal with an aggressive cancer. That's unfortunate.

A 3-hour lecture would be absolutely brutal, to give, or to attend. Why on Earth is that being scheduled?

Rabel म्हणाले...

"Our top-tier Benefits Package is considered among the best in the not-for-profit world and is an essential part of our commitment to making the Kansas City Art Institute an outstanding place to work. Our rewards package – including programs for time-off, health and well-being and financial security gives you, and your family, peace of mind. Most of our benefits are available to eligible employees the first day of the month following your hire date. We offer competitive pay, health, dental, life & disability insurance, educational assistance and generous time-off as well as a 403(b) Retirement Savings plan."

- KC Art Institute

h म्हणाले...

When I first went to work at a state university in the 1980s there was a faculty colleague who had (and died from) cancer, as did his wife in the same time frame. As I recall, other faculty members were asked if they were willing to "share" their sick leave with their colleague, and (of course) did so. It didn't last long and the family was eternally grateful. In the intervening 30 + years, it's never occurred again; and I was a novice not really understanding the system at the time; but does this happen? Of course it's not routine -- you need to have a person who is sick enough for long enough to use up their own sick leave, but not so sick that they die before it's used up. I'd be happy to hear about any similar circumstances.

Theranter म्हणाले...

What a whiner.

Try working for eight law professors, eight hours a day, only missing work when hooked up to chemo, under the knife, or being zapped during radiation.

Of course I loved my job, my profs, and the University. Maybe that's our difference. She comes across as a whiny, egotistical, ungrateful bore.

traditionalguy म्हणाले...

Oh Captain, My Captain is a Whitman classic. Walt invented the American English tongue the way Tyndale and Shakespeare invented the English English tongue

JPS म्हणाले...

MayBee, I am late to this but I found your comment at 11:23 very moving. That last line really hit me. I'm so sorry.

John Scott at 1:12, Amy at 4:50, and Theranter, 6:30: Good luck to all of you going forward.

MayBee म्हणाले...

Thank you, JPS.

And let me join you in your kind good wishes to John Scott, Amy, and Theranter.